ICCRN

Who are we?

The International CDKL5 Disorder Database (ICDD) was established in 2012 by researchers at Telethon Kids Institute in Perth, Australia. In 2019, these Australia based researchers teamed up with United States CDKL5 Centers of Excellence. Together, we are facilitating CDKL5 Deficiency Disorder (CDD) clinical research endeavors across the globe and we call this partnership the International CDKL5 Clinical Research Network (ICCRN).

Our collaborative research network has been made possible by the generous support of the National Institute of Neurological Disorders and Stroke (NINDS) and the International Foundation for CDKL5 Research (IFCR).